Welcome to the site of people with the 'Van Lohuizen syndrome'. The 'Van Lohuizen syndrome' is a rare skinaffection that is also known under the Latin name Cutis Marmorata Telangiectatica Congenita (CMTC).

This website doesn't only offer general information that is open for public, but also information that is open only for a select group. Within this group we distinct members and doctors. We provide newsletters, information of patients (ofcourse after approval of those involved), 'cases' and translated medical articles. Doctors have access to e.g. the newsletters, 'cases' etc. with the comment that this information is stripped of any personal data like names and addresses.

Concerning the confidentiality of the medical data that we have in pocession, we are registered at the Registration Chambre and obeying the Wet Persoonsregistratie (translated: the Law on Personal Data Registration).